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Due to the slow progression of the disease Janie had the opportunity to pursue her graduate education, and to enjoy a short career in film, and a longer career as a property manager. Following that, for ten years, she lived on a farm in the rolling hills of Tennessee, and she learned to grow food and to preserve and can fruits and vegetables. Her lime curd and cherry-orange marmalade are family favorites. Always a writer by inclination, she wrote for a local magazine whose primary goal was to promote food sustainability and local farming She has always cherished and nurtured the ties of family, arranging family reunions and weddings, and offering guidance and support to younger family members.
Due to her increasingly disabling condition, Janie has relocated to Florida where she has the support of friends and family during the wait-time for a new liver. She continues, as always, to be the glue that holds a community of people together, and is always ready with wit and wisdom and a new recipe.
Florida has been good for her health. Mayo Transplant Center in Jacksonville is following her case, and with the care of local doctors, she is living as actively as she is able during that period of time that all transplant patients refer to, when “you have to get sicker before you get better.” During that time, she, her family, and friends are asking for your financial donation to help us prepare for the large medical expenses incurred during the transplant period. We appreciate whatever you can do to help us get Janie through to a new period of health in her life.
Although Janie has some insurance coverage, the expense for a liver transplant surgery, housing, transportation, and medicines far exceeds the covered amounts. We are working with HelpHopeLive, a non-profit organization which ensures proper handling of donated funds.
PS: Lisa and I wrote a book! It’s on Amazon and Kindle!
Check it out – Thanks, Janie
This REVIEW by Jim Gleason
Friends forever, in good times and challenging ones
Sweet, Sour, Bitter: A Tale of a Transplant, a Friendship, and a Lemonade Stand (Paperback)
There is not much written by and about the caregiver role in the transplant process. In this reasonably short (71 pages) autobiographical book, through chapters alternately written by Lisa, the caregiver, and Janie, the liver transplant candidate (dealing with life threatening hepatic disease), we have a unique insight into how a friend and candidate come together after a long ago college friendship at a time of need. Both authors are well written and offer a very personal balanced reading style as they share their life challenge events from both perspectives, those of a caregiver friend and the supported patient, a very interesting dual story reading.
My only disappointment was the lack of closure to the liver transplant story when the book ends before that desperately awaited ‘call’ that an organ is available comes for Janie. Maybe that’s for another book or a revised version of this ‘first edition’ book. The reader, like the patient, is left waiting for that hoped and prayed for outcome, a successful transplant and recovery that will give both many more years of precious friendship. In that shared waiting between reader and the authors, maybe we have a new dimension in writing where the reader feels the uncertainty of there being no schedule for when a donated organ will be offered.
Their story makes for interesting and insightful reading for patients and their caregivers certainly, but maybe medical professionals would gain better insight into what goes on in their patients’ lives in reading this quick study book. Any patient would be blessed to have the support of such a dedicated caregiver friend as they navigate the unknown waters of facing possible death or the long-term and anxious wait for that ‘call’ coming in time. As they share in summary of their purpose in writing: “Our story is one of surprise, a friendship that had no particular reason for enduring other than it did. Two vastly different people who took strength in common ground and who glide through middle-age hoping it may glide a little longer.” Isn’t that what we all wish for in facing the challenge of a lifesaving organ transplant?
Oh, and that “Lemonade Stand” reference in the title, that’s their effort to raise needed funds for the medical expenses.
Janie and Lisa's Book on Amazon and Kindle
http://www.amazon.com/Sweet-Sour-Bitter-Transplant-Friendship/dp/150021423X/ref=sr_1_2?s=books&ie=UTF8&qid=1422821308&sr=1-2&keywords=sweet+sour+bitter
May 05, 2015
It's Cinco de Mayo here at Mayo. Just the usual bloodletting, poking, prodding and procedures.
I was recently diagnosed with Uterine Cancer. My PCP the venerable Dr. C., caught it early. There should be few negative side effects. I just need time to heal.
This isn't directly linked to the transplant issues. Just SMH. I feel like telling Dr. C. "fewer tests have a direct impact on the discovery of these inconveniences." Dr. C. knows a treasure trove when he's found one. Cha Ching!
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Sudden and surprised by this info.
Janie you will be fine and many people will help to support you financially and emotionally.I wish you well and you will be
in my thoughts and prayers for a successful transplant. May God be with you in every step on the way to surgery and recovery.<3
Catherine Adractas
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Janie Whitlock
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
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